Wednesday, May 09, 2007

Another reason not to get sentinel node lymph biopsy

An alternative to the sentinel node lymph biopsy is to get a PEM (Pet Scan Mammogram) and I am so thankful that I did NOT get the lymph biopsy that they assured me was very low risk for edema. Hmmmph

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Imagine beating breast cancer only to find out you're health problems may have just begun.

That's exactly what many women are dealing with, but there is good news.A new study has found a majority of those survivors face a new battle with lymph edema, which they'll fight it the rest of their lives.

When Lori Elgin finally beat breast cancer, she dreamed of carefree times with her family.She said she never thought dealing with the lymph edema that followed would be an even more challenging experience than the cancer."There's no cure for the lymph edema," said Elgin. "I mean, you're stuck with it. You just have to learn to manage it as well as possible."For Elgin, that means wearing a compression sleeve and glove on her right arm to help manage the constant and painful swelling,

The problem is often caused during surgery or radiation. Wherever lymph nodes are removed, lymphatic fluid can't drain. It accumulates and causes swelling. A new three-year study published in the Journal of Cancer Epidemiology Biomarkers and Prevention revealed how big the lymph edema problem really is."Over half of the women had experienced swelling sometime during the three years," said author Dr. Electra Paskett.

That's nearly seven times as many women as shown in some previous studies.Paskett, a breast cancer survivor, said she knows firsthand how debilitating the swelling can be."We're not supposed to lift anything very heavy," said Paskett. "Should avoid any repetitive action, repetitive motion like cleaning your house, vacuuming, things like that. So a lot of these things really affect a woman's life."Even more troubling is the psychological impact. There is no cure for lymph edema, only sleeves and medicines for pain and swelling.Besides compression sleeves and medications, many women get regular arm and hand massages to help ease their swelling. But Paskett said something more needs to be done.With so many women surviving breast cancer, she'd like to see more insurance companies pay for such therapy. And she hopes more scientists will focus on developing cures for the condition to preserve a better quality of life for cancer survivors.
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In my opinion - the risk of edema is not an acceptable risk. I don't even care if cancer IS found in the lymph nodes. Treat it with boosting your immune system, changing your diet by eliminating chemicals and processed sweets and foods and as a LAST resort using radiation or chemo after surgery when possible.

I am living proof that you don't have to burn, cut or poison to treat breast cancer. You just have to heed your body's call to change up a lot of what you are doing in your daily life and do it for good....

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